TOWIE: SMA disease explained - Kelsey Stratford raises awareness of sister's condition

Kelsey was seen throwing a fundraiser, as seen on TOWIE, to raise awareness of SMA – a disease that her sister Kennedy lives with.

It comes several episodes after the TOWIE star first opened up on-screen about the condition which affects her sister.

On the November 8th episode, she hosted a fundraiser which aims to raise awareness about what SMA disease is, with the support of her co-stars.

So what is SMA disease? Here is everything you need to know…

Screenshot: Kelsey Stratford, Episode 5 Series 26, TOWIE, ITV

Kelsey raises awareness of SMA

The TOWIE star opened up about her sister Kennedy’s condition during episode 5, saying her home life has been “traumatic”.

Kelsey revealed that she has looked after her sister since she was 12, and was reduced to tears after talking about the condition she has.

 

In the most recent episode, Kelsey hosted a fundraiser as an ambassador for charity SMA UK at a ping pong marathon, ahead of Christmas Jumper Day on December 11th which supports people with the condition.

What is SMA?

SMA, short for spinal muscular atrophy, is a genetic condition which makes muscles weak and causes problems with movement.

It’s serious and can become worse over time, however it can be treated.

Kelsey’s sister Kennedy is paralysed from the neck down, remains in an adaptive stroller and requires 24-hour care.

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Kelsey’s sister’s journey

Kelsey said that Kennedy has to go to hospital every 6 months to have an operation called spinrazza, which helps her muscles to move.

Doctor’s told Kelsey’s family that Kennedy would only live for up to 18 months, however she recently celebrated her 8th birthday.

Kelsey also had a brother called Karter who had SMA, who passed away at 4 months old. 

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